It's difficult to talk about it because we feel like we are the only people experiencing this condition. Not talking about it, however, makes us feel shameful, stressed, and prevents us from finding a diagnosis quickly.
Connect with people who fully understand how you feel and support those who are starting out.
Talk with the community about your experience and get practical hacks for living with it in everyday life.
Get to know the community members, in person or remotely, at our events or co-creation sessions.
Contribute with your ideas, experience and data to change things, concretely.
